AAFA plans, coordinates, distributes and reviews various national programs. These include advisory meetings, workshops, trainings, webinars, educational materials and continuing education programs for health professionals, school staff, community advocates and patients of all ages, as well as their parents and caregivers.
Centers for Disease Control and Prevention (CDC)
AAFA received contract awards and funding for many cooperative agreements over several years from the CDC’s National Center for Environmental Health and Division of Adolescent and School Health. This includes:
- A five-year complete school-based program. It will educate school staff, teens, parents and community health professionals with asthma using AAFA’s Power Breathing Program.
- A three-year project to teach school-age children with asthma and their families through the You Can Control Asthma program.
- A five-year project to train Head Start health service coordinators to teach fellow staff, young children with asthma and their families using the Asthma Basics for Children program.
- A five-year project to create easy-to-read educational lessons and materials in English and Spanish about asthma for home visitors and childcare providers. It will teach families and their preschool age children with asthma.
- A five-year project to develop an educational program for adults with asthma who don’t receive enough medical care. During this project, AAFA will create tools and review an educational program that uses technology. The technology will help improve self-management and awareness among people with asthma who are at high risk. We will work closely with the CDC and their state asthma programs to distribute the program.
Environmental Protection Agency (EPA)
The EPA awarded AAFA several cooperative agreements. These include a 15-year (3 cycle) project. It will teach health professionals about asthma management and environmental control through the Asthma Management and Education onsite and online programs. It will also include a six-year project to teach childcare providers about asthma management and controlling indoor and outdoor environmental triggers using the Asthma and Allergy Essentials for Childcare Providers program.
Patient-Centered Outcomes Research Institute (PCORI)
AAFA received a Eugene Washington Engagement Award by the Patient-Centered Outcomes Research Institute. This award was for a new project to help asthma patients work with the research community. The project is called “Training Patients with Asthma to Understand and Participate in Patient-Centered Outcomes Research.” It aims to increase the knowledge and skills of asthma patients, families and caregivers. It also aims to prepare them to take part in the design, implementation and evaluation of outcomes research. The project aims to train patients to understand and use the results of research to make health care decisions. The project is part of a group of projects approved for PCORI funding. The purpose of this funding is to help create skilled patients and others in health care and to get them involved in PCORI’s work.
Platform for Engaging Everyone Responsibly (PEER)
PEER allows patients to share health information with researchers and each other on their own terms. This helps researchers better understand the disease. It also speeds the development of partners for clinical trials. AAFA is one of 15 selected awardees to work with Genetic Alliance. We work with them to develop and refine the "white label" PEER while engaging our communities. PEER allows patients to share health data on their own terms. Patients set their own data sharing, privacy and access preferences. Participants will choose settings that both allow them to help find solutions and keep their privacy. AAFA will launch a patient-centered registry. We will invite people with asthma and allergies to participate. PEER will allow AAFA to support the patients, caregivers, clinical experts and researchers in the asthma and allergy communities.
Consumer-Focused Social Research
AAFA conducts consumer-focused and social research to better understand consumer and patient awareness, knowledge, preferences and behaviors related to asthma and allergy diagnosis, prevention and treatment. AAFA’s research offers unique views on the geographic, demographic and psychographic impact of asthma and allergies in the U.S. Through national studies, AAFA collects, examines and distributes timely and meaningful information about the asthma and allergy community.
Improving Asthma Outcomes, Lowering Costs
AAFA worked with the Brookings Institute to release Community-Based Approaches for Optimal Asthma Outcomes and Accountable Population Health. It is a paper that looks at how communities and clinics can improve outcomes for patients with asthma and lower health care costs. The AAFA-Brookings paper looks at the social causes of asthma and how we can address them in order to improve health, treatment and lower costs. The report also outlines the great work of the AAFA St. Louis Chapter.
Food Allergies: Global Burden, Causes, Treatment, Prevention and Public Policy
AAFA is co-sponsoring a new National Academy of Medicine (formerly the Institute of Medicine) consensus study on food allergies. The study, “Food Allergies: Global Burden, Causes, Treatment, Prevention and Public Policy,” involves stakeholders, including government agencies, academic institutions, industries, policy makers and patient groups. It also brings together leading investigators from relevant fields, clinicians and parents to look at food allergy issues. These issues include the frequency, severity and impact of food allergy. It also includes the current understanding of food allergies in diagnostics, treatments, prevention and public policy. This study will create a basis for raising public awareness about food allergies and recommend the direction of food allergy research. AAFA is part of this IOM project because of our commitment to those affected by the disease.